Shine A Light On Alpha-mannosidosis (AM): It’S A Matter Of Time

A webinar series dedicated to shining a light on alpha-mannosidosis, an ultra-rare genetic disorder caused by a deficiency of the lysosomal enzyme alpha-mannosidase. The symptoms, severity, and progression of alpha-mannosidosis vary widely between individuals, making diagnosis challenging and often delayed. Minimizing the time to diagnosis is important in ensuring that individuals with alpha-mannosidosis and their families receive timely access to support and specialist MDT care. Join our expert panel as they explore the diverse symptoms of alpha-mannosidosis, challenges, solutions for timely diagnosis, and best practices for long-term management and multidisciplinary care. The webinars will feature case study examples, panel discussions, and audience Q&A.